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Thoughts of a Belgian parent PDF Print E-mail
Written by <a href="http://www.autautaut.com/index.php?option=com_comprofiler&amp;task=userProfile&amp;user=79&amp;Itemid=50">Inge De Cleyn</a>   
Monday, 22 March 2010 22:46

I wanted to get back a little on the support that is given to families of autistic children.

I think I forgot to stress that we, as a family, have been very lucky throughout the years with all the help we have been given.  I am quite sure that a lot of people have had a more difficult time, long waiting lists and no proper school for their child.

When Margot was diagnosed 8 years ago, we hardly had to wait to be invited to what I would call "homecoming" sessions (VVA) with four other couples.  It was great to find other families facing the same educational problems with their child and to be given very helpful hints as how to cope.

Shortly afterwards we were visited during a couple of months, every two weeks, by a homecounselor (VVA), trying to get our familylife organized in a way that would make it easier for Margot.  He also took care of informing her sister in a very understandable way.  We were also very lucky that we live in a small village and that the elementary school Margot attended was very protective and willing to adapt its ways to make it easier for her.

The VVA (Association for Autism) also has people giving very "hands on" lectures for relatives and friends, so we took advantage of that opportunity as well to inform the parents of her classmates.  That also made it easier.

It must be said that the VVA really has a lot of material and people working to improve the awareness and to teach people on autism.  We found all their initiatives to be, either for free, or at least very low budget.

I do realize however, that over the last few years waiting lists have grown and that it might not be as easy to get all this help.

After elementary school, with adolescence, things became a bit more complicated.. the difference between Margot and kids her age, is becoming bigger.  After two years in a regular high school, with a person coming in twice a week (GON) to help her survive in a very chaotic environment, we changed to the school where she is now.

I have always turned to professional help when necessary.  So when times got rough in our family, we had the opportunity to call on a special "mental health counselor" who has been trying to teach her how to control her anger and aggression.

I am quite aware that with the school we choose for Margot, we are very lucky.  The autism-friendliness and the professionalism in coping and helping is really amazing.  What I like the most in the school's approach is the open relationship with the parents.  The school organizes meetings as well for parents to try and find ways to make life easier for the autistic children and suggestions are, whenever possible, implemented in a very swift manner. I feel there is a constant search from both sides to try to get the best out of every child.

The VVA also works regionally, organizing lectures and very informative sessions with real professionals on the subject. It is always a chance to meet other parents/families and to hear tips and tricks to solve problem situations.

So, as far as Margot and us, is concerned, I think we have been assisted in the best way at every moment of our life.  As far as the future is concerned, that is a different question.  I think we will need to find an environment that will be autism/ Margot friendly.  The only thing we can do now, is to try to get her professional skills as good as possible, and I think she is in the right school for this.  The autism awareness is growing, so we are hoping for the best.  Although sometimes the thoughts come in my mind, I try not to let it worry me too much and to take one day at the time.  I know she will be as ready as she can be when she comes out of this school, and there is not much we can do about the mentality of the economic society as a whole.

I think we will tackle the problem when it is getting a bit nearer.

But as I said, I think we have been very lucky.  Margot and we have been/and are still guided by people caring and with professional knowledge. I am sure that other people might tell a different story as waiting lists are getting longer over the years.

 

Bernadette Brassine (mama of Margot)

Last Updated on Wednesday, 25 August 2010 21:09
 
ASD-support in Sint-Janshof Mechelen Belgium PDF Print E-mail
Written by <a href="http://www.autautaut.com/index.php?option=com_comprofiler&amp;task=userProfile&amp;user=79&amp;Itemid=50">Inge De Cleyn</a>   
Monday, 18 January 2010 23:33

Organization:

At our school, we choose to integrate students with ASD in the regular classes. It means they have to reach the goals in their teaching level.

We provide education for students with a combination of ASD and a mental retardation. We provide extra support for students with the diagnosis ASD.

The staff tries to support the students in their individual needs:

Social skills:

The students exercise in small groups their social skills. The teacher trains daily situations.

General and social education:

If necessary the tasks are adapted to the student. It’s possible on the following domains:

  • Level of difficulty
  • Individual support during the lessons
  • Simplify and structure courses
  • Making step-by-step schemes

Vocational training

If necessary the tasks are adapted to the student. It’s possible on the following domains:

  • Tracing sensory sensitivities
  • Making step-by-step schemes
  • Simplify and structure courses
  • Subjects following the interests of the student
  • Individual support during the lessons

Internship and lessons at the workplace

We try to support the students as good as possible.

  • Looking for adapted internship places
  • Informing the workplace
  • Preparing the internship
  • Starting the internship together with the student

We try to search for the best support as possible. Herefor we take part in different projects for students with autism. During the following two years we have a pedagogical advisor who searches together with the school for a future for our students with autism. We want to expand the support for students with autism in the future with for example a silent zone, a crisis support area, ...

Last Updated on Wednesday, 24 March 2010 18:54
 
Autistic child PDF Print E-mail
Written by <a href="http://www.autautaut.com/index.php?option=com_comprofiler&amp;task=userProfile&amp;user=62&amp;Itemid=50">Administrator</a>   
Thursday, 12 November 2009 19:12

Autistic child

F. is an autistic child of 6, attending the first year of elementary school.

His cognitive skills are almost typical, he is able to read letters, words and sentences and numbers untill 30. He is also able to memorise new concepts he has just learned. To learn new abilities, he needs a lot of structure: a table and a chair to be able to stay calm and to pay attention, an individual special educator who can help him, very little sensory stimuli such as a limitation in visual and auditory “noises”. All these conditions enable him to be concentrated and to focus his attention on the activity.

Being autistic, his communication and social abililties are very compromised: F. is rarely able to express a desire or a need or to do a comment, but, in the contrary, he is able to answer to some simple questions using brief sentences of 3-4 words and to speak about something he knows very well. Frequently, his speech is characterised by the repetition of non-sense words or sentences heard at the tv. He uses speech and sounds as selfstimulation and not in a significant and communicative way.

Such as the auditory system seems to be compromised (not organically, but in the functional use), the visual one shows some peculiar characteristics too. He is frequently interested in everything is moving or is disappearing, such as opening ad closing doors or trays, hand fingers, and everything can reflect light, such as leads, glasses and windows. Often this special interest compromise his ability to pay attention to words and people.

When he has free time, he usually preferes playing alone (whatching leaps and cars outside the window, repeating some of his favourite songs, running all around the play area, etc.).

The work with him has been set to achieve the following objectives:

- the extinction of behavior problems (such as issuing screams and the production of non-contextualized sentences). In this case, the modus operandi that we have adopted is the use of token economy, by which we try to model the behavior of F. rewarding correct answers with a “star” and do not strengthen the inadequate response. At the moment, this strategy has become the best working with him and is used in all operational contexts.

Token economy:


 

Even when using the token, F. continues to give answers that are inconsistent with our demands, we use what is called “negative punishment”: the removal of the pleansing activity or object.

- Training on making functional questions: we know that making question is one of the most difficult and important skill the child with autism needs to master. For this reason, we try to improve F.’s ability on making spontaneous questions, by modifying the context. For example, at the moment of break, all the children usually eat some fruit. F. cannot bring it by himself, but he can ask to the adult “Can I have some apple?”. Everytime he is able to produce a functional-communicative sentence, the adult gives him whatever he wants.

- Give an answer to social questions: this is one of the crucial social skill. We usually work on this skill in semi-structured and structured contexts, in order to promote spontaneous conversation and trying to limit the ecoic prompt (without suggesting the answer verbally). This way to work on language use has been necessary because we have been able to verify that he usually repeats words without paying attention to what he says, simply trying to give the answer we expect. The type of prompt used and consequently an informative prompt, such as we suggest some cues to help him give the correct answer.

- At school the day is very structured and F. has the chance to move easily between the different activities through the use of his personal agenda, that is a sequence of every activity is giong to do during the school day.


- F. is following the school curriculum (such as his classmates, excvept for english and music), participating to the various activities: Italian, mathematics, drawing, reading stories and do exercises and workshops engines. To verify and consolidate what he has learned, we have also provided to have some moments of individual work taking place in personal “little” room, to allow the child to concentrate more easily and keep his attention longer on the task. These activities consist primarily in the revision of work already done in class, in imitation of the design and in moments of conversation, to improve the ability of F. to describe objects and situations by providing as much detail as possible.



- As mentioned above, the area most seriously compromised in the behavior of F. is the relational and that is why we work a lot to improve his social skills. Work in a natural environment is fundamental to create the multiple situations in which the child is "forced" to enter into relation with other people, especially with his peers. In this perspective, we structured the moments of work in small groups, during which F. has the opportunity to socialize and to increase its effectiveness in relation to others. The activities that are mostly playful and attractive, so that for F. is easier and more pleasant to spend time with his classmates (together with the track playing marbles, make puzzles and draw something to eat together). During these moments it is important that the child starts a comunication with his peer: the function of the adult is to help F. to respond correctly to the other children and never replace any of the two “speakers”.

Ilaria, F.’s individual teacher

 

Last Updated on Thursday, 12 November 2009 19:23
 
Autism Spectrum Disorders and treatment at school PDF Print E-mail
Written by <a href="http://www.autautaut.com/index.php?option=com_comprofiler&amp;task=userProfile&amp;user=62&amp;Itemid=50">Administrator</a>   
Thursday, 12 November 2009 19:09

Autism Spectrum Disorders


 

and treatment at school


Katia Tonnini, supervisor for ASD children


1. Brief history of autism

2. Problems related to autism

3. Behavioural approach

4. Diagnostic criteria

5. Treatment and education

6. Bibliography

1. Brief history of autism

The term autism comes from the old greek word autòs that means to be closed and to be fold on himself.

This term has been used in psychiatry in 1911 by Bleuler, in order to define one of the peculiar characteristics of the schizophrenic psychosis in adulthood.

After that, in 1943 Leo Kanner, a childhood psychiatric coming from Austria but working and leaving in the USA, used the same term to define a specific disorder. The researcher had found some common sympthoms in eleven boys, that showed developmental anomalies and difficulties in social relationships.

They showed the following sympthoms:

· Physically beautiful children, they looked like closed in a “shell”

· “Sameness” or insistence for the same things

· Incapacity to entre in contact with other people

· Verbal language development was later than normal

· Verbal language was used not to communicate

· Motor stereotypies

· Absense of imaginative and creative activities

· Good, often “extraordinary”, intellectual level

During the 50s and 60s, Bruno Bettelheim supposed that the Autistic Syndrome was caused by the wrong stimulation given by the parents, expecially in matter of emotive and affective exchange, personal cures and demostration of affectiveness.

In his opinion the wrong way parents -and expecially mothers- kept in touch and stimulated their children, caused the “retire” of the baby in an “empty fortress” and determined their closeness towards the rest of the world and their inability in socialization.

In the 70s Doctor Shopler, an american psychiatician, after having made many scientific researches about autism, considered it was caused not by a wrong parent’s stimulation, as Bettelheim supposed some years before, but probably by a genetic “problem”.

Even if this is considered (till now) the most perspective thesis, at the moment we do not have a scientific trial of this idea. He also elaborated a new approach of teaching to autistic children, the TEACCH program which implies cognitive, behavioural and psycho-linguistic strategies based on education and prevedibility.

2. Problems related to autism

One of the more controversial definitions given by Leo Kanner was about the autistic children’s intellectual level. In fact the idea of extraordinary intelligence made people believe (until now) in the “Rainman myth” (coming from the famous Stevenson’s film), that attributes to the autistic subjects an enormous and untrue intelligence.

The reality of clinical practice shows, in the contrary, that about the 65-70% of autistic children have cognitive difficulties.

The error of evaluation has been caused by what we today call “ability isles” which are extraordinary capacities that just a little part of the autistic population has (such as, for example, the calendar memorization, or the capacity to solve quickly very difficult calculus, or the knowledge of all the part of uman body, ect.). Those “isles of ability” are determined by hyper-attention on one or very little number of subject-matters by autistic children that have a quasi-normal intellectual level and social functionning.

Moreover Kanner, defining those children as affect by autistic disorder, underlined in particular their incapacity to develop an affective and emotional based relationship with other people (neither with their family members).

Afterwards psychodinamic psychopathology attributed the cause of the autistic disorder to a pathologic family setting and in particular to inadeguate mother’s behaviours. Bettelheim was the first to speak about ”icy-mother” in order to define the detached behaviour and the wrong-way modality of the mother to keep in touch with her baby.

Going back to the first Kanner’s interpretation, we can demonstrate what he considered the causes of the Autistic Disorder. In fact, the researcher spoke about “congenital incapacity” that means innate and non-later determined.

As I said above, at the moment we do not have scientifical trial of the innative thesis, but, once again, clinical practice give us many empirical proves.

The nature of autism and how to intervene have been the centre of many quarrels and harsh controversies between different currents of thought from 1943 till now. No other disease had never created so much disagreement inside the scientific community.

3. The behavioural approach

Today, the autistic disorder etiology seems to be connected more to neurobiological than setting factors.

Many researchers are studying cromosomical and genetical map in order to verify their thesis, even if at the moment it is not confirmed. Even if we can’t attribute to action a scientifical value, the clinical practice demonstrates the truth of this thesis.

First of all, the clinical practice shows that a wrong-way family interactions or behaviours not necessarily determines Autistic Spectrum Disorders (ASD). In the contrary, the autistic children often have adeguate and “non-icy” parents. At the same time, we have many examples of really high-risk family settings where no autistic spectrum disorder is connected.

Moreover many casese of similar disorders in the origin family are connected to autism (we often find relates affected by language disorders, “madness”, mental and developmental retardation, and sometimes, we even find cases of brothers/sisters or twins with autism). This evidence makes the scientific opinion believe about a neurobiological etiology.

Behavioural approach considers the Autistic Spectrum Disorders origined by an organic neuronal disturbance: surely, setting can condition the syndrome development into a positive or negative evolution, but it probably can’t determin it.

In order to define a disturbance as autistic syndrome, the whole sympthoms must appear not later than 36 months, otherwise we cannot define it as autism.

4. Diagnostic criteria

DSM-IV (the medical handbook defining mental disorders, wrote by the American Psychiatric Association) defines three compromising areas for the autistic syndrome:

1) Qualitative compromised social interaction (lack of looking into their interlocutor eyes, lack of mimical expressiveness, inadeguate body posture and gesture); inability to start and develop a relationship with other people, expecially of the same age; lack of affective social reciprocity.

2) Qualitative compromised comunication; lack or retardation of language development and lack of compensation with gesture; if language is adeguate, autistics are inable to start and develop a conversation with other people; stereotyped and ripetitive language not used to comunicate.

3) Limited and persevering behaviours, interests and activities (such as motory sterotypes, restrict interests in one or very little subject-matters, oggetti) and lack of creative and immaginative activities (no symbolic play, etc.).

5. Psycho-educational treatment

Following the controversial history of autism, we can observe that at every change of ethyologic theorical interpretation has followed a changement of intervention on autistic subjects.

Kanner used to think about autistic boys as “idiots savants”, because of what he believed their “extraordinary” intelligence. For this reason, he used to separate them from the rest of society and send them to special psychiatric clinics in order to study that “strange” and “new” pathology.

Bettelheim considered autism as a psychological disease and, for this reason, he proposed to “cure” children with psychoanalis, in order to reorganize their lost self-perseption and create a new imagine of their-own.

Many cures have been proposed but unfortunately they cannot solve what is naturally compromised. What we today know about autism is that there is no cure for it: we just can speak about treatment and education of autistic persons. The only way to teach autistic subjects cognitive concepts and social rules is to educate them.

Cognitive and Behavioural approach and evolutive and psycholinguistic theories such as the TEACCH programm (Treatment and Education of Autistic and Communication Handicapped Children, coming from E. Shopler, North Carolina), TED thérapie d’échange et dévelopment (coming from Lélord and Barthèlmy, France), Applied Behavioural Analisys (ABA, Skinner), Denver Model (S. Rogers), represent just some of the most useful approaches to intervention, whose long-lasting efficacy has been tested in many scientifical studies.

Those different psycho-educational treatments are based on autism positive caracteristics: their good visuo-spatial abilities, their need of prevedibiliy and structured organisation of time and space, their need of repetition and structured education.

6. Bibliography

· Jordan e Powell, Autismo e intervento psicoeducativo, ed. Erickson, 1997, Trento.

· Xaiz e Micheli, Gioco e interazione spontanea nell’autismo. Cento idee per favorire lo sviluppo dell’intersoggettività, ed. Erickson, 2001, Trento.

· Brauner e Brauner, Storia degli autismi. Dalle fiabe popolari alla letteratura scientifica, ed. Erickson, 2002, Trento.

· Shopler et al., La comunicazione spontanea nell’autismo, ed. Erickson,1997, Trento.

· Powers, Autismo. Guida per genitori ed educatori, Raffaello Cortina Editore.

· Beyer e Gammeltoft, Autismo e gioco, Phoenix Editore.

· Visconti et al., Il mondo di Alessandro, Phoenix Editore.

· Shopler et al., Attività didattiche per autistici, Phoenix Editore.

 

Last Updated on Tuesday, 01 December 2009 22:34